

The experimental meds are basically anything they gave someone for another reason which also seemed to have a positive effect on their daily energy levels.
So far I’ve tried: low dose naltrexon, mestinon and low dose aripiprazole. The first two had only negative effects while the last gives me a few more hours that I’m awake per day. From sleeping 20 hours in the worst case to about 12-16, I still can’t do shit but at least I’m awake.
Thanks, I’ve only known about the chronic fatigue part of ME since the trial I’m involved in also has some ME patients trialing the same meds.
Edit: reading again i think their was a small miscommunication, I don’t have MECFS, just something with similar symptoms so I know the feeling.