Hi all, my name is G, a soon-to-be 20-year-old whoās been battling the chaos in my mind since, well, as long as I can remember myself really, but it really all starts at 16 - the wonderful yet horrific time where you become more conscious and aware than ever. Iāve managed to thread together the fragments of my journey, considering I repress those memories, of the last four years of my life, living with an unaddressed ADHD and thought it might resonate with some of you here, and maybe help those who are going through a tough time to feel less alone. More so just to get -someone- to listen to my story.
It was around my 16th birthday, the time when the world feels so vast yet so constrained and confusing, that I stumbled upon random ADHD memes and symptoms online. Iāve always known of ADHD as being some widely āpopularā disorder, but never knew what it actually was. The more I scrolled, though, the more I saw my daily struggles encapsulated in those posts. It was horrifying and captivating at the same time. The self-recognition moment shook me, and rocket-launched me into figuring it out. Could it be? An explanation? Am I not just lazy? I donāt feel lazy! I try my hardest, but itās not enough! Why!? After immersing myself in information about ADHD for hours, turned into days, which turned into months, at last, I summoned the courage to approach my mom, who was so supportive and caring, itās like she knew. Surprise, she did. To my shock, she revealed that I was diagnosed with hyperkinetic syndrome (another name for ADHD) as a child. This is it! Iām on the right track! Iām not insane! Living in a country thatās currently aptly called one of the worst places on earth (to put it lightly), and rightfully hated by everyone with a brain, we recognized the mountainous journey through the nonexistent mental healthcare system that we were about to undertake to get the help I needed. All the while hindered by a condition that turned every task, from even the most basic one like brushing teeth, to choosing what the hell to do with my life, into equally herculean and seemingly impossible efforts, I was sinking under the weight of this discovery. It was horrifying, yet, I was naive and hopeful, reading on stories of people from better places on earth who can get that help. Itās possible, I thought. Surely, if I try, I thought. Summing up my courage, we plunged into the battle. Over a year long treacherous journey had me in front of something like 12-13 physicians. Neurologists, psychiatrists, psychologists, physicians, threading through a health system thatās as incompetent as it is free. My school psychologist - the first little stepping stone was my ray of hope, pointing me towards avenues of professional help, unable to do more due to her positionās limitations. But then it rolled into a giant shitball, like a snowball from Mt. Everest. Every doctor visit felt like walking a plank - Iāve never done anything like this. Revealing that Iāve researched my symptoms online, and suggesting that I was struggling with ADHD, would often trigger a dismissive and downright awful response from doctors. The atrocious claim that because Iāve sought help at all meant I didnāt have ADHD was a prevalent sentiment. And the nonchalant remark from a senior physician that belittled my struggle comparing it to not battling a fever was a blow for me. But I carried on. More than once, my symptoms were either ignored or misinterpreted. I remember walking into a session hoping for help with concentration issues and ended up with a bipolar diagnosis stacked on me within the hour, since apparently āmy mood changes because I fail to do tasksā is enough for that. I do not have bipolar disorder. The subsequent medication for it left me very sedated, docile, and heavily disrupted my sleep and energy levels - side effects that linger still to this very day. Catching COVID certainly didnāt help.
The ultimate breach of trust in the entire healthcare system, though, came from an approximately 50-60 years old doctor. Whom I personally looked up, recruited, asked for help, and he was initially open. His royal shartiness, instead of empathizing with me, or addressing literally anything Iāve said to him during the session, turned it into an unsolicited rant about the old ways of brute force ānurturingā of the Soviet Union army. Truly a despicable act. Telling me I simply donāt know how to live, that the fact i have any ambitions or do anything for them is an indicator I donāt have ADHD, saying Iām completely healthy, not addressing a single one point of my concerns. A boiling point that led to a harsh exit with me telling him to burn in hell and an anxiety attack in a bright summer day - the scariest, yet somehow comically ironic moment of my life. I remember feeling bad in the midst of the storm that I left my mom with that piece of shit. He told her after I stormed out that itās simply āhormonalā and it will pass. Spoiler alert: it did not. Later even the hospital administrator / head doctor who was present called and apologized, saying we should try another opinion. But I was done.
To this day from this interaction I fear doctors like fire, and that will probably remain for the rest of my life. I left out a lot of stuff, like the months of placebo, unproven and generally unsuitable medications, how much it took a toll on my world view and general life motivation, talks of suicide in the last encounter with a doctor, being forced to come out for a āquestionnaireā, et cetera. I could go on, and would love to, but I feel like no one would read something like that. Iād love to continue in the comments though, after all we all have something in common.
Unfortunately, my journey doesnāt have a satisfying resolution yet. Iām now in a different country where the acceptance and accessibility to ADHD diagnosis and medication are a fair bit better, but I still canāt afford the process. My struggles with ADHD have receded to the background amidst the tsunami of mundane survival requirements, studying, chores, all of which I know you all know the crushing struggle of all too well (wow, what a sentence!). The necessity of immediate tasks creates a transient motivation (and not in the good sense of the word, more like urgency), but the resulting mental toll is just so much to bear. Too much. Itās summer right now, but when I was studying, Every. Single. Week. I plummeted into depression head first due to just not being able to live a normal life. I dream about a day when I can pursue a formal diagnosis and actual help, hopefully with some surplus money which I donāt have, and maybe secure the medication I need. Maybe someday in the future I will lead a ānormalā life. But for now, as I pen down my journey so far, I feel largely directionless but with a spark of hope that I wonāt feel this lost forever.
The road ahead is uncertain and feels impossible and inaccessible. But I still have a glimmer of hope. Sharing this with you all feels cathartic and makes me feel less alone. Hoping for better days.
P.S. no this is not the States. There, at least if youāre born filthy rich there you can get it, and the proven meds are legal. Not back home, not for me.
Donāt give up home. Weāve got you. Keep talking and advocating. I still have no clue what country youāre in that would be worst HC than the US.
No offense but I find the āworse than the USā statement kind of insensitive, and I hear it all too often. Not to delve into politics, but letās just say the US at least HAS meds, like, at all. If youāre filthy rich, you can get it, and ADHD is a recognized and treated disorder. Back home itās just illegal and unrecognizedā¦
True. Sorry about that. Just a bit jaded.
How is āif youāre filthy richā better than ānever?ā Two things can be bad at the same time.